Here are stories of six incredible boys living with XLMTM. They range in age from three years to 19 years and each one experiences life in his own unique way.
“I was in shock! The doctor was even in such shock he ordered twelve pregnancy tests followed by blood work to confirm … we waited five years and then this is how he came to us. Everything about Elijah is ever so dramatic!”
“Our path is to cherish every moment because you just never know… That is why Emi is in this world, to teach us.”
“You’re breaking down inside and then somebody says they may have an answer … Whether that answer is good or bad, it is at least information that takes you out of the dark.”
“Because of Milosz and his interests, we too are getting out more, traveling when we can just to explore. We go to classical car shows and listen to more music. Not only is Milosz growing, but he is helping us grow too.”
Like most 18 year old boys preparing for Uni and entry into adulthood, Zak carries the usual concerns, hopes and dreams held by any coming-of-age teenager.
“From time to time, he is still a bit different but he is our different and special boy who is very inspirational and he makes us very proud as parents.”